Anger over cuts to speech therapy service for autistic children
THE family of a severely autistic six-year-old are angry that a service which helps him communicate has been cut by the NHS.
Notts Community Health say it will only provide speech and language therapy services for children with autism until the age of six.
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'Written off': Dylan Scothern, of Netherfield, with mum Rachel. Dylan, six, suffers from severe autism.
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This means Dylan Scothern of Netherfield, who can only say a few words because of his condition, will no longer be seen by a therapist.
The therapist had previously been visiting his school to set targets for teaching staff on how his communication should improve.
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Dylan's mother Rachel now fears her son will not progress and will never be able to communicate properly.
She said: "Basically they have written him off.
"I think he will be at a standstill, he can't move forward without this service.
"You can't expect the school to do this because they are dealing with so many other things."
Notts Community Health, which provides health services in the community outside the city, says it wants to focus on "early intervention" for younger autistic children.
In a letter to Mrs Scothern's MP Vernon Coaker, managing director Eleri de Gilbert said it faced an £11 million funding gap this year.
She said officials "had to make some tough decisions based on tough choices".
Mrs de Gilbert said: "Our decision has been based on available clinical evidence and in consultation with the commissioner of our services."
Gedling MP Mr Coaker has been lobbying the NHS on the family's behalf.
He said: "This is the human cost of the cuts that have been made and are being made.
"It simply is not acceptable that the most vulnerable pay the price.
"This is a young child whose needs were being met by the speech therapist and it is being taken away.
"It is cruel, it is wrong and it should be changed."
Children like Dylan, with Autistic Spectrum Disorder, have problems interacting and communicating.
Speech and language therapists carry out assessments and develop care packages which help parents and carers set communication targets for their child.
Notts Community Health is now only offering the service to youngsters aged five or younger. It has previously offered it to youngsters of all ages, but now wants to focus on younger children to help them when they start school.
Mrs de Gilbert's letter said autistic children's teachers and parents were the "most appropriate channel of therapy, as it is the carer who will hold most significance for the child".
She said Dylan's carers, including staff at William Booth Primary School in Sneinton, had been trained in techniques to help him communicate.
But Mrs Scothern, a teaching assistant, said they were not qualified to offer the same support the therapist provided.
The 38-year-old mother-of-four said: "For me this service was key to Dylan. I need to be able to help him because it is such an isolated world when you don't have speech."
A spokesperson for Notts Community Health (NCH) said the £11m funding gap this year represented 11% of its budget.
She said: "This was due to expenditure pressures from previous years, as well as this year, and as with all NHS providers, we received no increase in its income for 2010/11.
"All of our services have been reviewed in order to close this gap in funding, deliver efficiencies and improvements in productivity and Speech and Language Therapy is one of those services.
"NCH acknowledges that many difficult decisions have been made as part of this process."




Comments
by tax payer, nottinghamshire
Saturday, October 30 2010, 10:50AM
“10 thousand dollars they live in a different world to us if we could afford ,we would pay for it .”
by Anita, Nottingham
Saturday, October 30 2010, 7:47AM
“I am appalled at another cut to a vital service our children rely on, and at such a young age. Without proper intervention from specialists our children cannot make progress with their speech and communication leaving them isolated from others. Are the SALT services going to pick them up again as adults when they are still struggling, or are we expected to pay for our children to have the right to be able to speak?
As a parent AND a teacher I am NOT the 'most appropriate channel of therapy' for my child, the speech therapistswho have spent years training and working with children with autism ARE.
I would like to know when, as a parent of a child who is almost 5, I would have been told about these cuts. I assume it would have been the day the services were withdrawn!!”
by CR Petersen, Idaho
Friday, October 29 2010, 7:16PM
“Fortunately we now know enough about Autism to know which children are most likely to benefit from intensive interventions and which types of interventions provide the most benefit for the child, considering: age of child, specific Autism Spectrum diagnosis, functioning level of the child, and willingness of the parent(s) to be active participants in treatment.
In many cases intervention can be provided for even less than $10,000.00 per year. Sometimes significantly less. If the right intervention is provided for three years to the child best suited to benefit from that intervention by a well qualified therapist properly implementing the intervention with active and continuing participation by the parent, government will literally save hundreds of thousands and in some cases even millions of dollars over the life of the child; plus it¿s the right thing to do for the child and family. It¿s the right thing to do fiscally, therapeutically, and humanely.
If it is the wrong intervention provided by poorly qualified interventionists without active parental(guardian) participation and without well written contextually mediated objectives, it is a disservice to the child, family, and taxpayer.
Depending on the type of intervention, the time spent by the parent can be either time set aside to specifically work on the intervention, a part of the parent and child¿s typical routines, or a combination of both.
The right intervention for the right child, correctly implemented, will provide significant improvement in both functioning level and behavior.
More specific detailed information, references, and resources can be found at: http://www.bestoutcomes.blogspot.com/ and some additional linked websites.”
by Amy, Lenton
Friday, October 29 2010, 10:08AM
“I have the same problem my daughter is 6 and has just had the same service taken away from her. But she has learning difficulties on top of the autism, this service has been vital as there has been great improvment in her speach and behaviour. I am in agreement with the woman in the story our children have been left on the scrap heap. I have also been in touch with my M.P. who helped and I advise anyone with the same problem to get in touch with there M.P.”